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The implementation of SCID newborn screening in the United States has led to earlier diagnosis for most infants, significantly increasing survival rates. Advancements in treatments, such as hematopoietic stem cell transplantation (HSCT), have also significantly improved the survival rates for SCID. As a result, more families now seek information and support for managing SCID. The SCID Foundation serves as a trusted resource, providing current information and support to families.

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